Callaway’s Story

Callaway Henry Adelmeyer was born Wednesday, August 28th at 4:30 pm. Callaway, along with every child born in the last 30+ years got the new born screening, one of the tests is for cystic fibrosis (CF). We got the phone call when Callaway was two weeks old from his pediatrician that the test for cystic fibrosis came back showing he might have it. With no idea what cystic fibrosis was, we were set up with an appointment to meet with a doctor at Children’s Hospital in Milwaukee the following day. We went and were very overwhelmed with the pulmonary clinic team who we spent five hours with, the team of pulmonary doctors, nurses, a dietitian and physical therapist all filled our heads with information of what we would have to do for our little guy now and for the rest of his life. After that visit, we made several additional trips the first year. He had gotten one of the major bacteria that CF kids get, so we needed to treat that along with balancing out the proper amount of enzyme pills to help his digestive system and maintain a high fat diet to help him gain weight. He was in the 25% for children his age and to help children with cystic fibrosis, the more they weigh, the stronger and more of his lung tissue would help fight off the bacteria and the mucus that builds up in his lungs.

Today, Callaway is 4 1/2 years old. He’s growing up fast and becoming such an incredible little man. He is already paying close attention to detail and follows his medication and treatments. He can tell you what foods have good and bad sugar along with how many pills he needs to take with what foods. He is such a good and big boy. He takes his meds and does his treatments everyday while being the happiest little boy I have ever seen. He makes us laugh everyday.

He is currently a bit above the 50% in weight for children his age. He will be able to do anything he wants; play sports (hopefully golf- but currently every sport his his favorite), read, learn and find a cure for cystic fibrosis, and be just like every other kid/adult. He brings bouncing joy to everyone instantly. Matt and I would have never imagined we would have such an awesome little angle.

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Breath of Life Foundation
W5726 Firelane 12
Menasha, WI 54952