The Richlen Family Story

Our story about cystic fibrosis began almost 6 years ago when our daughter Courtney was born. She was 6 lbs. 6 ounces when she first came into our lives. Courtney was barely a week old when we learned that a newborn screen showed that she had cystic fibrosis. Later a sweat test confirmed this even more. Our child quickly became a patient at the Pulmonary Clinic at Children’s Hospital in Milwaukee, WI and was assigned to a wonderful team of doctors. Courtney receives excellent care from her skilled team of medical professionals. Over the years we have learned a lot about the disease and have met some nice people and families dealing with the same issues. We are very fortunate that our little girl was diagnosed and began treatment so early in her young life.

Our daughter takes 5 medications daily (6 every other month). Some medications are over the counter. Some are approved by the FDA for cystic fibrosis and some are as needed such as oral antibiotics and probiotics.

We have health insurance, but unfortunately, have to meet a huge deductible before copays kick in. For this reason and the high cost of medications, we are fortunate to have a grant that helps pay for the majority of our daughter’s medications that are approved by the FDA for cystic fibrosis.

The Breath of Life Foundation has provided financial help for us for additional things such as copays, medical bills, our out of pocket costs for antibiotics, probiotics, and over the counter saline and nasal medications that our other grant does not cover. As most people with cystic fibrosis know these costs can add up quickly after surgeries and especially in cold and flu season. The Breath of Life Foundation reimburses these costs that can really leave a hole in our wallets. Thanks to the Breath of Life Foundation a lot of financial worry has been taken away and we are able to focus on keeping our child healthy. Our family is happier as a result and Courtney is able to live her life to the fullest.

We hope that someday in the near future there will be a cure for our daughter and all those with cystic fibrosis. Until then we pray that she will always be able to get her medications to continue to do well.

Thank you.

The Richlen Family

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Breath of Life Foundation
W5726 Firelane 12
Menasha, WI 54952